yeah I know what you are going through. I have a cornuta with the same thing, maybe.
The biggest thing I found is husbandry, in my case he kept re-infecting himself after treatment. I cant comment on your husbandry but make sure you are keeping it as clean as possible! Mine has gotten much better but I have to be vigilant. I would ask what kind of tests you are getting and if they are going deep enough, beyond the routine fecal and blood work. Dont settle, there is something obviously wrong.

jf

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