Kenny,
While we have never met in person and may never meet in person, I want you to know that you have my full support. Anything that is within my capacity to do, I will. I'm not the richest man in the world, but at the very least I can provide a non-judgmental ear for you to vent to. As far as I'm concerned there is no "upper limit" of support that I'm willing to give, I have no idea what I would have to offer, but if it's mine, you can consider it yours.
The mother of my first child had a boy about a year before her and I began dating. I had known her for a couple years before that and knew that the father of this boy had pretty much abandoned them mostly because of the medical problems he was born with. I was essentially the only father this child had ever know and I was happy to call him son.
Before Tristan was born we knew that he had Spina Bifida (which is when the spine is exposed... the skin never sealed around his spine). This condition can be extreme to the point that the person afflicted with it can be paralyzed. The doctors told us that he would never walk. It took Tristan longer than it does most kids, but utilizing a walker and leg splints he eventually learned to walk.
By the time he was two and a half we knew that there was something else not quite right with him. He had frequent, quarterly, doctor exams that we not only expensive but also could take a day or more each. The testing was always a stressful thing for everyone and usually I stayed in the room with him, whether it was x-rays, a blood draw, or some of the other, more invasive, tests that needed to be performed the agreement with the doctors was that I would ALWAYS be able to be in the room and within physical contact with Tristan (even during some of the surgeries). It calmed him down and made his mother feel better knowing that someone was there with him. She always came to the appointments too, but was often unable to go into the testing rooms because she would break down anytime they performed a test that would cause pain (which was often).
When he was two and a half the doctors finally were able to give him a diagnosis of Autism. Due to his physical afflictions Tristan will never be continent (be able to control either his bowel or bladder), he has multiple large scars on his back, a shunt in his head (to drain away excess spinal fluid that would otherwise put pressure on his brain) and been diagnosed with Autism. He had been through a lot in his short life up until then and at the time I had no one to talk to or lean on. Eventually his mother and I split (after having a child together, Tristan's younger brother). During the time I was with her, though, I had to be the strong one and she had both me and her family to help her.
I know what it's like to be up against impossible odds and to see a small child you love dearly suffer. I know what it's like to wonder why someone so small should be tested in such a big way. I discovered that some of life's questions don't have an answer and even if there is some sort of reason - we (as mere men) will never learn the answers in this life time. The best we can do is to band together, take care of each other to the best of our abilities and pray. I have no idea how Jesus prayed so hard that he sweat blood, but I do know what it is like to pray and beg with every fiber of your soul.
There were a few times that Tristan's life was on a delicate balance. I've been there, brother, I know what it is like not knowing.
I'm here if you need me, you have my prayers and like I said, anything that is within my power to do or provide is yours for the asking.
Here for you,
Brandon Sander
sander.brandon@gmail.com
brandon.sander@mnsu.edu
507-276-4296 (Central Time... I'm a night owl, usually up until 3 or 4 a.m. so don't hesitate to call, even if it is "late"
If I don't answer, leave a message and let me know the best time to call back, I'll bend over backwards to return your call. Call for anything, even if it is just to cuss someone out for an hour or so, - don't feel bad about it, I've been there, and understand the emotions.
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Stay United!

"...I say 'apparently' because despite all our progress she is not at all a tame or handle-able snake and gettting her from that cage would re-start a war.. and we've had a good armistice for several months now."-Gus Rentfro - I love this quote!