You also might check with Dr. Milroy I believe he had a study group for 10 year and I may be mistaken but I think one of them had lived for 10 years and may even be alive now, Cornatum from California if I remember right.........

Many of us have had HL's for 4 years or so.......
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Phrynosoma.org

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signature file edited. [phw 11/14/04]